Ketiz Singh

The Long Wait for Support: A Mother’s Hope for Her Daughter

Imagine being told that you have to wait 30 years for the support you need. That’s the reality for Nicole Cender and her daughter Caitlyn, who has Willam syndrome, a genetic disorder that makes it hard for her to live independently. Caitlyn, now 24, relies on her mom for everyday tasks like cooking and hygiene.

The Weight of the Waitlist

Nicole worries about what will happen to Caitlyn when she’s no longer around. In Ontario, there are 52,000 people with developmental disabilities on the wait list for services, with some waiting for up to 30 years. The only way to move up the list is if they experience a crisis, like a parent passing away or being unable to cope.

• Wait times can range from 10 to 30 years
• 52,000 people are on the waitlist in Ontario
• 28,000 are waiting for supported living services

The Struggle for Independence

Caitlyn dreams of living on her own and feeling a sense of accomplishment. Nicole works from home to support her but admits that it’s a challenge to keep Caitlyn engaged during the day. Day programs are limited, and without proper support, families like theirs are left burnt out.

• Without more financial support, Community Living chapters may struggle to help families
• Day programs are limited, leaving families feeling isolated
• Nicole works from home to support Caitlyn’s needs

A Mother’s Love and Determination

Nicole is determined to create a fulfilling life for Caitlyn, even if it means taking on multiple roles in her daughter’s life. She runs a gift shop in their basement and attends vendor shows on weekends to ensure Caitlyn can be part of the community.

Despite the challenges they face, Nicole’s love for her daughter shines through. She wants Caitlyn to experience independence and accomplishment, and she’s willing to do whatever it takes to make that happen.

Let’s come together to support families like Nicole and Caitlyn’s, and ensure that everyone has access to the resources they need to thrive. It’s time to make a change and provide a brighter future for all individuals with developmental disabilities.